As founder and chief executive of Believe in a Cure, a nonprofit organization advancing research for FOXG1 syndrome, a rare ...

Rare diseases may be uncommon, but their impact on individuals, families, and communities is profound. Since 2008, Rare Disease Day has been observed globally on February 28 (or February 29 in ...

Learn how Rhee Perry, BSN, RN, approaches leadership transitions by developing a learning agenda, as he takes on the role of CEO at Southern Tennessee Regional ...

Tom Hughes is the founder and CEO of Virtual Science AI.

The Trump administration is using a loophole to block the U.S. National Institutes of Health process for issuing new research ...

Advocates and patients with rare diseases spent Tuesday morning talking with lawmakers and educating the public as part of National Rare Disease Week.

In this conversation, Mindy Estes, M.D., former CEO of Saint Luke's Health System and former AHA board chair, and Tori Bayless, CEO of Luminis Health and AHA board member, discuss how hospital leaders ...

This year, the Louisiana Rare Disease Advisory Council celebrated Rare Disease Day at the Capitol Gardens in Baton Rouge.

The Trump administration has for weeks been blocking the U.S. National Institutes of Health process for issuing new research ...

If Australia followed England’s lead and listed drugs such as Wegovy on the PBS for weight loss, this could bring the cost ...

Patients with CKD have a 56% higher prevalence of severe mental health disorders such as schizophrenia, bipolar disorder, or ...

The recent wildfires in Los Angeles are just the latest in a series of natural disasters that have disrupted cancer care.