1 School of Nursing and Midwifery, Queen's University Belfast, Belfast, UK 2 School of Sociology, Social Policy and Social Work, Queen's University of Belfast, Belfast, UK Correspondence to Jayne ...
Background Cystic fibrosis (CF) is an incurable, progressive disease that affects multiple organs, causing burdensome symptoms. This study aimed to explore the palliative care needs in patients with ...
Correspondence to Dr Nicola White, Division of Psychiatry, Marie Curie Palliative Care Research Departent, University College London, London W1T7NF, UK; n.g.white{at}ucl.ac.uk Objectives To determine ...
Introduction Palliative care facing the unbearable, sustained suffering of some terminally ill patients seeks ways to relieve this suffering, while staying within professional ethical boundaries that ...
Correspondence to Dr Qian Lu, Peking University School of Nursing, Beijing 100191, China; luqian{at}bjmu.edu.cn; Dr Yan Sun, Peking University Cancer Hospital & Institute, Beijing 100142, China; ...
Objective The concept of a good death is a motivating factor for end of life care policy; this article examines what English end-of-life care (EOLC) policy defines as a good death. Methods Critical ...
Objectives This systematic review aims to assess the effectiveness of bereavement support interventions (BSIs) for parents of an infant or a child who has died from a medical condition or in ...
Background Children with life-limiting conditions often have complex needs, making it challenging for services to provide satisfactory care. Few studies consider whether services actually meet ...
Background We report a case of using 3D printing to create a bespoke eye cover for an 18-year-old man with left maxillary alveolar rhabdomyosarcoma. Further, the patient had proptosis causing chemosis ...
Background Oral complications in palliative care patients are very common. Guidelines for oral care of these patients are available from several different sources within the UK. However, these ...
Background Phase of Illness (POI) is one of the measures in the Outcome Assessment and Complexity Collaborative (OACC) suite of measures, and describes the current stage in the patient’s illness ...
Background Living with advanced, incurable disease presents multifaceted adversities which negatively impact on various domains of well-being (McCaffrey, Bradley, Ratcliffe et al., 2016). Whilst ...
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